Sickle Cell Anemia is a serious condition in which the red blood cells can become sickle-shaped (that is, shaped like a "C"). Normal red blood cells are smooth and round like a doughnut without a hole. They move easily through blood vessels to carry oxygen to all parts of the body. Sickle-shaped cells do not move easily through blood vessels; they are stiff and sticky, and tend to form clumps and get stuck in blood vessels. The clumps of sickle cells block blood flow in the blood vessels to the limbs and organs. Blocked blood vessels can cause pain, serious infections and organ damage.
As per DMER draft proposal of June 2008 Sickle Cell Disease Control program is implemented in 34 high prevalence districts in phase wise manner by NHM since 2008.
Phase I - (2007-08) : Thane, Nashik, Nandurbar, Amravati, Gondia, Gadchiroli, Palghar (New District Established in 2014)
Phase II - (2009 -10) : Bhandara, Nagpur, Chandrapur, Wardha, Yavatmal
Phase III - (2010-11) : Dhule
Phase IV - (2011-12) : Jalgaon, Nanded, Washim, Akola, Bhuldhana, Aurangabad, Raigad.
Phase V – (2012-13) : Hingoli (as per order of Hon. Lokayukta, Maharashtra State, Hingoli district is included)
Phase VI - (2016-17) : Ratnagiri, Sindhudurg, Kolhapur, Satara, Sangli, Ahamadnagar, Pune, Solapur, Jalana, Parbhani, Beed, Latur & Osmanabad. (As per new Hemoglobinopathy guidelines of GOI)
Objectives and Goal of the program:
- Creating Public awareness.
- Screening general population. (Target age group 1 to 30 years, Pregnant women, family members, Symptomatic individuals of all ages)
- Training of Medical officers & other paramedical staff at PHC, RH & DH for testing, counselling & treatment.
- Equipping hospitals with electrophoresis machines.
- Providing screening facilities at Primary Health Centre, Rural Hospitals, Sub District Hospital & District Hospital.
- Referring positive cases from Solubility positive samples for electrophoresis test to nearest Electrophoresis testing Centre.
- Identifying carrier & sufferer.
- Issuing yellow cards to carriers and red cards to diseased individuals.
- Counselling carriers& sufferers for marriage and family planning & Sufferers for importance of regular treatment.
- Providing Prophylactic & Symptomatic treatment at Primary Health Centre, Rural Hospitals & District Hospitals.
- Speciality treatment at District Hospital & Medical College.
Role of NGO's in Sickle Cell Program in districts
- To Create Awareness about Sickle Cell Disease.
- To motivate community for Solubility test.
- To transport Solubility positive blood samples for electrophoresis test.
- To register Sickle cell sufferer & carrier.
- To Counsel Sickle cell sufferer & carrier for marriage and family planning. Sufferers are counselled for regular treatment & Counselling for prenatal diagnosis (CVS) is given to eligible couples.
- To distribute colour coded cards. (Red-Sufferer, Yellow-Carrier, White-Negative)
- Home Visits to Sufferers.
- To prepare& distribute IEC in local/tribal language
- Pregnant mother to counsel for early registration & prenatal diagnosis.
Arrange meetings & testing camps for Schools, Collages & Ashram Schools etc.
District |
Name of NGO Appointed |
Palghar |
Navoday Gramin Sanstha, Jawhar, Palghar |
Gondia |
Prabuddha Vinayaki kalyankari Sanstha, Tiroda, Gondia |
Gadchiroli |
Arogyadham Kustharog Nirmulan Sanstha, Kurkheda, Gadhciroli |
Nagpur |
Aniket Bahuuddeshiya Sanstha, Nagpur |
Wardha |
Shri Namdev Maharaj Bahuuddeshiya Shikshan Sanstha, Wardha |
Chandrapur |
Sarvodaya Yuvavikas Sanstha, Chimur, Chandrapur |
Bhandara |
Bharatiya Aushadhi Anuisandhan Sanstha, Bhandara |
Institution wise Testing & Services to be provided
In this program to achieve the objective basic screening test is being made available at all the health institutes in project area.
Positive samples in basic screening test (Solubility test) are sent to Electrophoresis centre for confirmatory test i.e. Electrophoresis test
Institution wise services to be provided in SCDCP are as follows
Sr. No. |
Institute |
Services to be provided |
1 |
PHC |
1)Free Solubility testing
2)Counseling
3)Regular Health check up of Sufferer
4)Prophylactic & Symptomatic treatment to be provided
5)Maintenance of records & register |
2 |
RH/ SDH/ WH |
1)Free Solubility testing
2)Free Electrophoresis testing (only if Electrophoresis centre)
3)Counselling
4)Regular Health check-up of Sufferer
5)Prophylactic & Symptomatic treatment to be provided
6)Blood transfusion to Sickle Sufferer if blood storage centre or blood bank is available
7)Maintenance of records & register |
3 |
DH |
1)Free Solubility testing
2)Free Electrophoresis testing (Electrophoresis centre)
3)Counselling
4)Regular Health check-up of Sufferer
5)Prophylactic & Symptomatic treatment to be provided
6)Blood transfusion to Sickle Sufferer if blood storage centre or blood bank is available
7)Specialty treatment
8)Maintenance of records & register
9)HPLC Test (of HPLC Centre)
10)Telemedicine referral |
Institutions involved at districts in SCDCP
Sr. No. |
Name of District |
No. of PHC'S |
No. of RH/SDH |
No. of DH |
No. of WH/Multi Speciality Hospital |
No. of Medical College |
No. of Electrophoresis testing centers |
1 |
Thane |
33 |
8 |
1 |
0 |
1 |
2 |
2 |
Palghar |
46 |
12 |
0 |
0 |
0 |
3 |
3 |
Nashik |
104 |
28 |
1 |
1 |
0 |
4 |
4 |
Nandurbar |
58 |
14 |
1 |
0 |
0 |
5 |
5 |
Amravati |
56 |
13 |
1 |
1 |
0 |
7 |
6 |
Gondia |
40 |
11 |
1 |
1 |
0 |
5 |
7 |
Gadchiroli |
45 |
12 |
1 |
0 |
0 |
7 |
8 |
Nagpur |
49 |
11 |
0 |
1 |
2 |
4 |
9 |
Wardha |
27 |
8 |
1 |
0 |
0 |
3 |
10 |
Chandrapur |
58 |
13 |
1 |
0 |
0 |
5 |
11 |
Bhandara |
33 |
9 |
1 |
0 |
0 |
3 |
12 |
Yavatmal |
63 |
17 |
0 |
0 |
1 |
5 |
13 |
Dhule |
41 |
8 |
1 |
0 |
1 |
3 |
14 |
Jalgaon |
77 |
20 |
1 |
0 |
0 |
7 |
15 |
Nanded |
65 |
16 |
1 |
0 |
1 |
5 |
16 |
Washim |
25 |
6 |
1 |
0 |
0 |
2 |
17 |
Akola |
30 |
6 |
0 |
1 |
1 |
3 |
18 |
Buldhana |
52 |
15 |
1 |
0 |
0 |
5 |
19 |
Aurangabad |
50 |
13 |
0 |
0 |
1 |
4 |
20 |
Raigad |
52 |
13 |
1 |
0 |
0 |
4 |
21 |
Hingoli |
24 |
4 |
1 |
0 |
0 |
2 |
Total |
1028 |
257 |
16 |
5 |
8 |
88 |
State Physical Report
Physical Report |
Year |
Total Solubility Test |
Total Diseased |
Total Carrier |
2007-2008 |
15310 |
- |
- |
2008-2009 |
68590 |
4 |
74 |
2009-2010 |
421246 |
1054 |
11941 |
2010-2011 |
1182057 |
2843 |
24001 |
2011-2012 |
3121263 |
3037 |
37782 |
2012-2013 |
2155666 |
2034 |
25219 |
2013-2014 |
3847479 |
2240 |
32876 |
2014-2015 |
3063505 |
2169 |
28967 |
2015-2016 |
3715070 |
1915 |
25642 |
2016-2017 |
1363035 |
944 |
11447 |
2017-2018
(April 2017 to Jan. 2018) |
879996 |
900 |
11511 |
Total |
19833217 |
17140 |
209460 |
|
